Self care for Irritable Bowel Syndrome

As of last weekend the Self Care Plan for people with irritable bowel syndrome (IBS) is free access for those people with the condition and for those who might feel their symptoms are down to IBS, but are unsure and wish to know what to do next. Check it out here:

http://www.theibsnetwork.org/the-self-care-plan/

As the UK charity for people with IBS we felt it was important to have this information for everyone to access. I know of no other site that has information on symptoms, medical treatments, dietary treatments and psychological symptoms such as anxiety and depression that often follows this diagnosis, in one area and including tools that can help

such as the bowel relaxation recording. It also has information on alternative treatments and how useful these are for symptoms. It has been checked by the IBS Network team of advisors including gastroenterologists, psychotherapists and dietitians to ensure the information is as comprehensive and evidenced based as it can be. We also requested members to comment as the best people to advise us are people who are living with this condition. The plan is still open to comment so do please get in touch if you wish to make any compliments, suggestions or constructive criticism, we do wish to continue to improve this tool.

http://www.theibsnetwork.org/contact-us/

The plan is also useful to health practitioners to aid patients in clinic, I use it when I am in clinic. We have 10-20% of the population in  the UK living with IBS at any one time so self-care is going to be vital to help people to manage, we hope the plan will be a tool that people are happy to use and perhaps more importantly happy to recommend to others to spread the word.

We still need membership to help us to continue as a charity – membership includes the self-care plan symptom checker, access to ask health professionals questions, the help line, can’t wait card and travel translation card.  Well worth joining, also to help us to continue to provide help and support for people with this condition.

Marilyn and the #IBS Myth

I have recently been interested in celebrity and IBS – would someone famous divulge that they have IBS? Would they want to act as an advocate, perhaps? My twitter followers would tell you I do hold a certain amount of disdain for celebrity culture, but I also appreciate the good work a role model can have to support a cause. I am not averse to sidelining my principles to help. Having a role model would be really beneficial as in my view we certainly need some support for this condition. Could any of these people be a real role model to help with promotion of the cause?

http://www.topnews.in/people/marilyn-monroe

There appear to be a number of famous people who clearly have not, or would ever be able to give consent to discuss this very private aspect of their lives. Whilst looking into celebrity and IBS I can across the following article. It appears Marilyn was reported to have had IBS, she was also reported to have been ‘unhygienic’, eating in bed and pushing the remnants of her meal under the bedclothes when she had finished. This was reported to have been disclosed by Clarke Gable (in a biography by David Brett) – who had a cleanliness fetish, she has also been classed as one of the top 15 filthiest people.

http://www.standardmedia.co.ke/?id=2000012098&cid=349&articleID=2000012098

So – it was reported by a person who ‘had’ an issue with dirt – is this a good scale to use to measure someone’s cleanliness? Possibly not, but it is a good titbit to sell a publication, however.

http://www.huffingtonpost.com/2012/08/01/marilyn-monroe-fbi-files-_n_1730017.html

It is always reported, after describing her apparent less than desirable cleanliness habits – oh by the way, just so you can know this, alongside her obnoxious habits, she also had ‘a form of IBS.’ I am not sure what ‘a form of IBS’ means as a diagnosis – it either is or it clearly isn’t. Marilyn always held a fascination for me, I am not sure why, perhaps it was her ethereal qualities, the fact that she died young and had a pretty hard life. Her beauty is indisputable, even in the first picture in this post, windswept and ruffled she appears alluring. Yet she was also vulnerable, courting nurturing – one of her reported virtues. She does not deserve to have her memory belittled by gossip about her personal life, the worst of it is she cannot defend herself.

http://jamiemalanowski.com/blogwp/2012/01/page/2/

She had a tragic life and fifty years after her death we still are enthralled by her story but we really should apply the Socrates triple filter test to this – do we know this is true? Well, Clarke Gable cannot confirm that he said it, let alone prove that it was in fact true. Is this something good? – the reported slovenliness no, obviously not. She may have been ill at that time, the circumstances are never included in the short internet reports. Do we, therefore, have a right to report this information, assuming it were true? It is a piece of useful information? Well the fact that she had IBS might be an interesting fact that would be useful to inform people IBS can affect anyone, but did she consent to us knowing? However, when reporting someone’s health status to help others it is vital HOW you inform – discussing it whilst also reporting a range of spurious unappealing habits clearly does not shed IBS in a good light. An incorrect association of IBS with unappealing habits may have been made by the report authors, this is damaging to what we want to ultimately achieve and the association is so far wide of the mark – simply false, but in fact, we don’t know if she had IBS at all. We clearly don’t know if what has been said is fact and neither does it pass any of the triple filter test. We cannot ask Marilyn for her consent so we should respect her memory and not gossip about something that we know little real facts about.

Rose popcorn Low Fodmap

A subtle hint of rose and vanilla in freshly warm popcorn – fills the kitchen with delicious smells. Please note due to updates for the Low FODMAP diet January 2013 popcorn should be consumed with caution as high levels of consumption will result in higher amounts of fodmaps. A portion should be a small cereal bowl full at any one sitting.

Ingredients

120g popping corn

1 tsp oil such as corn, rapeseed or

1 cap full of vanilla essence

1 teaspoon of rose flavoured syrup (check for fructose corn syrup)

½ teaspoon of food colouring if desired

2 tsps of powdered artificial sweetener (check for FODMAPs)

Method

Mix vanilla essence, rose syrup and food colouring in a dish.

Put oil and popcorn into a pan with a lid and heat over a high heat on the hob.

When the corn starts to pop carefully add the vanilla mix by lifting the lid carefully and pouring it in quickly, shake well with the lid on. Continue to heat till all the corn has popped.

Lift the lid and sprinkle over the sweetener, replace the lid and shake well till all the corn is coated.

Serve!

Fancy a dose of wellbeing for your IBS? Work with people who have IBS?

We have been planning an event at The IBS Network it’s on the 17th of November in Sheffield. The details are on the poster – attend at the Octagon Centre from 10:30 – 4.00 pm. Seminars, cooking sessions, free one to one consultations with health professionals. Treat yourself to a little Wellbeing!

For more information about the event please visit www.theibsnetwork.org/wellbeing.asp

For journey planning http://www.yorkshiretravel.net/journeyplanner/enterJourneyPlan.do?hss=vyTl162847206

Remember, remember the 5th of November – bangers and roots!

I hated history at school, queen this, king that, on this date such and such, blah, blah, blah, blah, blah yawn, zzzzzzz , then awoke with a start as my head dropping forward jolted my brain awake, before the teacher noticed – I hoped. It all seemed to merge into one confusing mess, I could never remember any of it, even with a very young brain. Perhaps it was the way that it was taught, I don’t know, or perhaps it didn’t really appeal to me. No Horrible Histories for us as children, wish I had this when I was younger. Check it out:

http://www.youtube.com/watch?v=D7exoXGUbIA

I have found as I have got older that actually I am quite interested in history, linking historical events to festivals is one very good way of remembering. Guy Fawkes was part of a band of catholics who plotted an assassination attempt against James the first and others at the state opening of parliament in 1605. He was found just about to light the gunpowder, arrested, sentenced then hanged, drawn and quartered – nasty business! The discovery of the plot is commemorated every year with bonfires – traditionally with a burning Guy, fireworks and lots of warming food to eat!

http://en.wikinews.org/wiki/File:Sparkler.JPG

Remember, remember the fifth of November,

Gunpowder treason and plot.
We see no reason
Why gunpowder treason
Should ever be forgot!

Guy Fawkes, guy, t’was his intent
To blow up king and parliament.
Three score barrels were laid below
To prove old England’s overthrow.

By god’s mercy he was catch’d
With a darkened lantern and burning match.
So, holler boys, holler boys, Let the bells ring.
Holler boys, holler boys, God save the king.

I found the above copy of the traditional poem on the website for Leigh School – some really cool information on celebrations – check it out here

http://www.leighinfants.co.uk/southendpn/index.php?module=ContentExpress&func=print&ceid=68

Now on nights were you want to be out watching fireworks and doing other fun stuff cooking is probably in the back of your mind. How about this bangers and roots recipe? – really simple to make, FODMAP friendly and just the ticket to eat outdoors, if you wish. If you are having a barbecue you can put these vegetables on skewers instead and put them on the barbie.

Ingredients

1 orange carrot

1 purple carrot

1 yellow carrot

2 Parsnips

Small handful of chopped pumpkin

Small handful of cherry tomatoes (care with the amount)

1/2 dozen gluten-free sausages (if you are following a Low FODMAP diet please check flavoured sausages for onion and garlic powder.)

1 teaspoon chilli powder

1 teaspoon of smoked paprika

1 tablespoon of garlic infused olive oil.

Method

Wash vegetables and peel carrots, parsnip and pumpkin, chop. Chop potato with skins on and add them all to a large baking tray. Pile ’em all in – no need to be prissy about it.

Drizzle over garlic infused oil and lay the sausages on the top. Sprinkle over the chilli powder and smoked paprika, add a small amount of salt (I didn’t need salt – perhaps you should taste it after cooking and add it if needed.)

Place in an oven (or on the barbie, cut vegetables thinner and skewer) gas mark 6.

Cook at the top of the oven till nicely browned – yum, a real crowd pleaser on a chilly November night (the purple carrot looks a bit burned, I assure you it’s not – it’s just the dark purple colour, perfectly done!) This should keep you warm whilst outside enjoying the festivities, serves three.

Take care with your real bangers and keep your furry critters in the house away from harm.